Nearly 6 years on … and we’re still smiling …

Yes it’s been a while I know – I’ve been getting probes from people asking for an update so here it is … Summer was fantastic!  We got to enjoy the relaxed pace of the non-school season and our vacation to East Africa lived up to all our expectations and more!  The animals cooperated very well …

Summer is here!

All is good on the health front for Alpesh.  Bloodwork was great last month – kappa lightchains are behaving themselves at 28 mg/l with a 1.29 ratio.  He has another appointment this week so we’ll see if there’s been any changes.  I was thinking just the other day that the disease went into remission in January 2009 – so …

First update of 2014!

I had planned to do an update in January which slipped to February and now here we are on March 7th!!  I am stunned that we are already 3 months into the year!   We hope 2014 has been good to you so far …  As a quick health update, Alpesh’s last few Dr Z visits have …

Thanksgiving Update

Yesterday was Thanksgiving for us in the USA and it truly was another reminder of how thankful we are for all the love, support, faith and positive energy that has propelled us to our current situation – we are now 5 years from Alpesh’s original diagnosis and things continue to go in the right direction. Latest …

Late Summer Update

I am sure from the title, you can surmise that things continue to go well – in fact so well that I couldn’t manage a “Summer Update”  but had to delay to a “late” summer update!  Since the last posting in April, Alpesh has had four Dr Z appointments, a visit with Dr Khalid (Transplant …

Spring Update

From monthly updates, I went down to an update every two months and now, if Alpesh’s health continues down this excellent path, I’ll only need to provide seasonal updates – otherwise I’ll just keep repeating myself 🙂   Fingers crossed for a “Summer Update”. Kappa lightchains are currently at 29.5 mg/l – a little high but nothing to be concerned …

Good start …

Not much news really but I felt I should update you all as I’ve had a few E-mails asking status.  We finished last year with good health results for Alpesh and it appears as if 2013 has got off to a good start also.  However, we are waiting for confirmation of this as we do not have …

Seasonal Update

Thanks to everyone who sent us E-mails regarding the last update – the research was certainly a wonderful piece of news that keeps us looking forward and keeping faith.   After all they do say … “Feed your faith and your fears will starve to death”.  Alpesh has had two Dr Z visits since the last update and …

A step closer?

I wanted to share the below with everyone as it’s exciting news … I just stumbled upon it last week: http://multiplemyelomablog.com/2012/09/canadian-reovirus-research-impressive.html Click on either the  Radio interview or the TV news report – it’s promising and interesting information on a possible virus to treat Multiple Myeloma!  This month’s blood results came back and all is good – in fact …

August Update

As promised – just wanted to post the results from Alpesh’s latest blood work.  Kappa Lightchains are about 26 mg/L so very slightly above the range and the ratio between kappa and lambda still remains within range.  Most importantly no M protein (yay!) and nothing to indicate that the disease is rearing its ugly head at …

Aloha …

No further clues on where we went on our summer vacation this year!  We just got back and the Islands of Oahu, Kauia and Maui provided the perfect haven for a multitude of activities and some much needed rest.  Between scuba-diving, zip-lining, snorkeling, kayaking, trekking through rainforests to heavenly waterfalls, visiting Pearl Habor/Iolani Palace, hiking up/down volcanoes, the boys first surf lesson …

Infrequent Updates

I have been approached by a few disappointed friends/family-members to find out if I have stopped updating the blog since my last post was in March.  Whilst I love communicating with you all, my infrequent updates are truly and thankfully a sign that things are going well and not that I am too busy!   I …

Maintenance is the way to go …

I had a hard time entitling this post.   There are always dramatic titles for when things go badly but when things are going well, every title seems so “boring”.   Please don’t think I am complaining that we are blessed with continued remission – far from it!!   The kappa lightchains & ratio although fluctuating, seem to be of  no …

Status Quo

February already?  My goodness!   No January update since there wasn’t much to report really.  Alpesh’s bloodwork continues to remain the same.  The ratio of the kappa/lambda lightchains did go out of range very slightly but since there’s no M protein or any other alarm bells, Dr Z feels that there is no reason for concern.   So much so, …

Looking back … and forward …

2011 was definitely a rollercoaster year for us in terms of emotions.  We had some significant events – some good and some bad -that changed our lives but 2011 was a good year in terms of Alpesh’s health and that is always a tremendous achievement considering three Christmas’s ago, we really didn’t know if he’d make it this far!   December results …

What are we thankful for?

For those in the US, we hope you all had a great Thanksgiving Break!  We certainly did!  It was so nice to have a few days off to spend with family and friends.  We also got the added bonus of glorious weather here which was the icing on the cake.  Due to the Thanksgiving break, Alpesh blood …

Kappa/Lambda Ratio

I have had numerous people ask me about Alpesh’s latest bloodwork results to see if the Kappa lightchains went up or down so I wanted to make sure I got the results on the blog as soon as possible.   The suspense is all over … they went down, very slightly, but definitely down.  On the flipside, the …

Up Again

Our celebration last month from the great bloodwork results appears to be short-lived unfortunately.  Alpesh’s kappa lightchains are back up again to 28 mg/l!  That’s a big jump and we are completely baffled as to why this is so much higher than the month before.  The ratio between kappa/lambda is now 1.8 which is higher …

August Update

No updates in June & July because I was in England and, quite frankly, I really wanted to get away from it all and not think about the “normal” stresses of life!   Alpesh and the boys joined me in England in July and we had a wonderful time catching up with family and friends.  The boys …

An impromptu bone marrow biopsy pays off …

On Friday May 20th, during Alpesh’s monthly Dr Z appointment, we convinced Dr Z to do an impromptu bone marrow biopsy to ease our concerns over the fluctuating kappa lightchains in the blood.  Those things look painful so I am not sure I would have been up to an unexpected drilling through my bone, but Alpesh was ready and willing to bear the …